Terry Fox PROFYLE — a game changer for children, young adults with cancer

Terry Fox PROFYLE — a game changer for children, young adults with cancer

“I’ve been participating in the Terry Fox runs and have been a supporter of The Terry Fox Foundation for over 25 years. Since 1994, I’ve led and organized our corporate team to unite around this cause. Like many others, I have lost family and friends to cancer and believe in the importance of investing in research to move forward faster with better treatment outcomes and more options for our loved ones. I am very excited that The Terry Fox Foundation is focusing on hard to treat cancers for children and youth through PROFYLE and believe that this effort to unite top scientists, clinicians, and collaborators across the country will create new hope for young people who need it most”.

– Jerry Richardson FCPA, FCMA – Calgary

Story provided by Andrea Tang of the Terry Fox Foundation

Thirty-eight years ago, Terry Fox embarked upon a mission to run for those who couldn’t: to give young people with cancer, like himself, hope – hope for a cure.

Today, the Terry Fox Foundation carries on Terry’s vision of never giving up, continually working towards improvements in treatments and outcomes for pediatric cancers. Terry Fox PROFYLE – Precision Oncology For Young People – is a new initiative that will support babies, children, and young adults with hard to treat cancers whose families have been told they are out of conventional treatment options.

For the 20 percent of young people whose cancers have spread, returned, or are resistant to treatment, outcomes remain stubbornly grim and have not change much since Terry’s Marathon of Hope. Terry Fox PROFYLE is for that 20 percent.

Terry Fox PROFYLE will focus entirely on children and young people’s cancers, seeking to drive innovation and move the foundation’s understanding of overall cancers forward. Children’s cancers express themselves differently; therefore adult models cannot be used to treat cancers in young people.

For the first time in Canadian history, more than 30 pediatric cancer research and funding organizations have joined forces through Terry Fox PROFYLE and have committed to molecularly profile the tumours of these patients, no matter where they live in Canada. This program also connects the field’s top researchers and clinicians, and provides a means to share data as well as treatment outcomes, facilitating the adoptions of precision medicine – the right treatment for the right patient at the right time. This will enable researchers to identify cancer patients with similar profiles and outcomes from treatments from across Canada for further study. At the patient level, this innovative program will lead to expedited diagnostic results, new clinical trials, new treatment options, and, most importantly, hope.

CPA Alberta is proud to help raise the awareness of this important initiative and encourages Alberta CPAs to learn more about the program. To take an in-depth look into Terry Fox PROFYLE, watch this video or visit  www.terryfox.org/profyle